Losing someone who has been living with aplastic anaemia can be devastating. While living with aplastic anaemia and receiving treatment can be incredibly challenging, the treatments that are available nowadays often allow people to lead healthy and fulfilling lives. However, living with aplastic anaemia comes with risks of complications such as bleeding and infection, and treatments may not always be as successful as we hope for, and you may be reading this page as someone close to you has died.

The process of grieving and dealing with bereavement can be difficult, and it's important to note that there is no right or wrong way to grieve. You may have lots of questions about what led to the death of your loved one, or may wonder if things could have been done differently.

We welcome you to call our Support Line on 0300 102 3202 where you will be able to speak to our Support and Outreach Team, who will be there to listen to you and offer their support. Whether it's something as simple to offering a friendly, listening ear or signposting to you other forms of support, rest assured that we are here to help.

Other sources of support

Practical advice and information

When we are faced with bereavement, it can be difficult to know exactly what to do - from registering a death to planning a funeral, it's something that many of us have no experience of until we're face with the death of a loved one.

Citizen's Advice offer useful information on their website about the steps that need to be taken after someone dies. You can access their website by clicking on the buttons below.

Citizen's Advice - What to do after a death (England)

Advice for people in Scotland

Advice for people in Wales

Advice for people in Northern Ireland

Coping with grief and loss

When a loved one dies, it is normal to feel a range of different emotions - sadness, anger - perhaps even relief. There are lots of organisations that can offer support to help you deal with these difficult feelings, worries and concerns, and we've listed some of them below.

Cruse Bereavement Support

Cruse are a charity that can support people in the UK who are grieving, no matter how long ago they have been bereaved. They have a helpline, where you can speak to a trained volunteer about how you are feeling, and where appropriate they may also be able offer 1-1 support, such as bereavement counselling.

How to access this support: via the Cruse Bereavement Support website, or call 0808 808 1677

The Good Grief Trust

The Good Grief Trust can offer support to anyone who is bereaved and looking for support. They can help you to find support that is relevant to you in your local area, for example by directing you to a local charity or support group.

How to access this support: via The Good Grief Trust website

Winston's Wish

Winston's Wish provide bereavement support to children and young people up to the age of 25. For example, they offer an online safe space for young people to talk to others about their experiences of loss, and can offer support and advice to parents and carers about how to support their children who are grieving.

How to access this support: via the Winston's Wish website, or Support Line by calling 08088 020 021

Child Bereavement UK

Child Bereavement UK offer support to families who are grieving, either when a child is grieving or where a child has died. They offer support in a number of different ways, ranging from a helpline to bereavement support groups which take place both in person and online.

How to access this support: via the Child Bereavement UK website, or Helpline on 0800 02 888 40