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  • Understanding your diagnosis.
  1. Home
  2. Understanding your diagnosis.

Understanding your diagnosis.

If you or someone you know has recently been diagnosed with aplastic anaemia, you might be feeling a little overwhelmed. 

In this section of our website, you'll find the basics, to help you get your head around what this means.

What is aplastic anaemia?

Aplastic Anaemia is a rare and serious blood disorder caused by the bone marrow not functioning properly. In people with aplastic anaemia, the bone marrow fails to produce enough of all three types of blood cells – red, white and platelets...

Read more

We are here for you

Not everyone understands aplastic anaemia. We do. Whatever your question, get in touch via phone, email or social media.

Contact our support line

In person or online, connect with our support team and meet others who have been dealing with a recent diagnosis.

Find an upcoming event

Find blogs and videos created by other people about their experiences of being diagnosed with aplastic anaemia or supporting a loved one.

Stories about diagnosis

Resources you might find useful right now...

Register with The Aplastic Anaemia Trust

Register with The Aplastic Anaemia Trust

Are you living with aplastic anaemia, or a related condition like PNH, Fanconi anaemia, Dyskeratosis Congenita or Schwachman Diamond Syndrome? Or are you supporting a friend or family member who has? Please take a few minutes to register with us here. Read more

Published: 31st July, 2025

Updated: 4th February, 2026

Author: Ellie Dawes

Conditions connected with aplastic anaemia

Conditions connected with aplastic anaemia

Conditions that may cause aplastic anaemia, or which aplastic anaemia patients are more likely to develop. Read more

Published: 18th February, 2025

Author: Ellie Dawes

Bone Marrow Biopsy tests

Bone Marrow Biopsy tests

An introduction to what a bone marrow biopsy is, why you might have one, and what happens when you have one. Read more

Published: 24th January, 2025

Updated: 5th August, 2025

Author: Ellie Dawes

Other types of anaemia

Other types of anaemia

There are many different types of anaemia that affect the body in different ways. Have a look at this page to find out more about some of the more common types of anaemia, and how they differ from aplastic anaemia. Read more

Published: 8th October, 2024

Author: Sam Williams

What does THAT mean??

What does THAT mean??

Stuck on a medical term and feeling lost at sea? Try our A-Z jargon buster... Read more

Published: 2nd September, 2024

Author: Ellie Dawes

AA Voices: diagnosis

AA Voices: diagnosis

Read and watch the stories of other people in our community, talking about their diagnosis. Read more

Published: 24th June, 2024

Author: Ellie Dawes

What is aplastic anaemia? An animation for children

A simple explanation video, suitable for children, that explains what's happening in our body when we have aplastic anaemia. Read more

Published: 24th June, 2024

Author: Ellie Dawes

What is aplastic anaemia?

What is aplastic anaemia?

Aplastic means your bone marrow is failing to produce enough of all essential blood cells. Learn more about the condition, treatment, and how it impacts your life. Read more

Published: 19th December, 2023

Updated: 19th March, 2026

Author:

Comments: 1

The Aplastic Anaemia Trust Patient Support Facebook Group

The Aplastic Anaemia Trust Patient Support Facebook Group

Our online Facebook support group is a fantastic source of peer support for people whose lives are affected by aplastic anaemia. We run a bustling main group, plus sub groups for people on Watch & Wait and for people who are bereaved. Read more

Published: 8th July, 2022

Updated: 19th March, 2026

Author: Ellie Dawes

Get support

Get support

If you or someone you know has been diagnosed with aplastic anaemia or another rare bone marrow failure condition, we are here to help. No question is too big, or too small. Contact us online or give us a call. Read more

Published: 26th March, 2021

Updated: 2nd May, 2026

Author: Sam Williams

Diagnosis and treatment: a short summary

Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia. Read more

Published: 6th April, 2018

Updated: 2nd September, 2024

Author:

Comments: 2

Back to top

Latest

  • Treatment to reduce your risk of infections

    Treatment to reduce your risk of infections

    Anti-microbial drugs that you may receive include antibiotics, anti-viral and antifungal drugs. They prevent and treat infections (infections which can be more dangerous for people with aplastic anaemia.)

  • Raising for the rare

    Running for Thomas!!! My son was diagnosed with Severe aplastic anemia in June 2025.

  • Young People's Support Group Taster Session

    Young People's Support Group Taster Session

    Are you aged 16-25, and affected by a rare bone marrow failure condition? If so, we'd love you to join us at our young people's support group taster session where we will help you to navigate stressful and uncertain times.

  • London Landmarks Half Marathon 2027

    London Landmarks Half Marathon 2027

    Join our 2027 London Landmarks Team! Spaces are limited and going fast so we recommend signing up now!

Most read

  • Covid Vaccination Updates

    Covid Vaccination Updates

    All of the latest updates about Covid vaccines and their impact on the AA community.

  • Treatment involving anti-thymocyte globulin (ATG)

    Treatment involving anti-thymocyte globulin (ATG)

    If you are an adult patient going into the hospital for ATG treatment, this fact sheet is for you

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of all essential blood cells. Learn more about the condition, treatment, and how it impacts your life.

  • What is receiving ATG treatment like?

    What is receiving ATG treatment like?

    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • Treatment with ciclosporin

    Treatment with ciclosporin

    Ciclosporin used as part of Anti-Thymocyte Globulin (ATG) treatment for adult patients

  • Diagnosis and treatment: a short summary

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Get support

    Get support

    If you or someone you know has been diagnosed with aplastic anaemia or another rare bone marrow failure condition, we are here to help. No question is too big, or too small. Contact us online or give us a call.

  • Holidays and Travel

    Holidays and Travel

    How to plan a holiday when diagnosed with aplastic anaemia

  • Eltrombopag for the treatment of aplastic anaemia

    Eltrombopag for the treatment of aplastic anaemia

    Eltrombopag is one of the newer treatments for aplastic anaemia. You can find out more about it here.

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

Tag cloud

ATG Buffy Buffy Younger Impact Fund children diagnosis Elin's blog fundraising mental health Parents Positive stories Santa Splash stem cell transplant Super Rare video videos young people
Emotional Wellbeing support

Emotional Wellbeing support

Living with a rare bone marrow failure condition, or supporting someone who is can have a big impact on your emotional wellbeing. Our expert team are here to help you navigate these challenges and help you to feel less anxious and more in control. Read more

Published: 3rd January, 2024

Updated: 1st April, 2026

Author: Ellie Dawes

Register with The Aplastic Anaemia Trust

Register with The Aplastic Anaemia Trust

Are you living with aplastic anaemia, or a related condition like PNH, Fanconi anaemia, Dyskeratosis Congenita or Schwachman Diamond Syndrome? Or are you supporting a friend or family member who has? Please take a few minutes to register with us here. Read more

Published: 31st July, 2025

Updated: 4th February, 2026

Author: Ellie Dawes

Live in Wales? Write to your Senedd candidates and ask them to ensure patients have access to eltrombopag!

Live in Wales? Write to your Senedd candidates and ask them to ensure patients have access to eltrombopag!

On May 7th, the people of Wales go to the polls to elect new members of the Welsh Parliament. This election is an opportunity for those impacted by aplastic anaemia to raise the vital issue of fair access to medications for those living with rare diseases. Read more

Published: 7th April, 2026

Updated: 16th April, 2026

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