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  • The AAT Spring Awareness Campaign 2019
  1. Blog

Spring awareness blogs 2019

What it's really like to get pregnant after Aplastic Anaemia

What it's really like to get pregnant after Aplastic Anaemia

After my treatment for aplastic anaemia, my husband and I discussed the possibility of trying for another baby. The research out there was limited and the data - not all that reliable. Could I go through with a pregnancy and risk the very real possibility of relapse? In 2015 we bit the bullet, tried and fell pregnant! I was over the moon, but I was terrified. Read more

Posted to: Spring awareness blogs 2019

Published: 4th March, 2019

Updated: 3rd September, 2024

Author: Grazina Berry

Comments: 6

What it's really like to face psychological challenges after surviving Severe Aplastic Anaemia

What it's really like to face psychological challenges after surviving Severe Aplastic Anaemia

I remember while I was receiving treatment how desperate I had felt to be normal like my friends at school, to be able to play out, take part in the school sports day and spend time with my sister. But, years later when I finally started recovering, I remember feeling an overwhelming sense of panic Read more

Posted to: Spring awareness blogs 2019

Published: 1st March, 2019

Updated: 3rd September, 2024

Author: Grazina Berry

Comments: 5

What it's really like to help your son deal with mental health challenges as a result of AA

What it's really like to help your son deal with mental health challenges as a result of AA

Mental health issues around serious illness are complex. The medical doctors do their best to heal the physical self but wellness is about the whole self. For young people with few life experiences a serious illness is hard. Read more

Posted to: Spring awareness blogs 2019

Published: 25th February, 2019

Updated: 3rd September, 2024

Author: Grazina Berry

Comments: 2

What it’s really like to help people with aplastic anaemia as a clinician

What it’s really like to help people with aplastic anaemia as a clinician

Aplastic anaemia and bone marrow failure are very complex rare conditions, requiring the input of highly specialised caregivers who help to educate fellow staff, patients and their families. This sharing of knowledge is integral to my role and is one of the main reasons it has always appealed to me. Read more

Posted to: Spring awareness blogs 2019

Published: 25th February, 2019

Updated: 3rd September, 2024

Author: Grazina Berry

Comments: 1

What it's really like to go back to work after a bone marrow transplant

What it's really like to go back to work after a bone marrow transplant

I had my bone marrow transplant in March 2018, and I returned to work at the start of October. Many people felt that was far too soon, but it certainly felt right for me. Being in work whilst still regularly travelling to hospital for tests and still taking immuno-suppressants would not have been a good idea. Read more

Posted to: Spring awareness blogs 2019

Published: 25th February, 2019

Updated: 3rd September, 2024

Author: Grazina Berry

Comments: 2

What it’s really like living with AA and loving exercise

What it’s really like living with AA and loving exercise

I've been off work and the gym for one month, I'm bored and irritable, missing the gym, missing work so I start walking, then my consultant says that I can return to the gym and work, that's good news but I have to be careful. Read more

Posted to: Spring awareness blogs 2019

Published: 22nd February, 2019

Updated: 3rd September, 2024

Author: Grazina Berry

What it's really like to stop doing something you love after being diagnosed

What it's really like to stop doing something you love after being diagnosed

I firmly believe that if I can go from being severely ill in 2010 getting tired from simply walking up a flight of stairs, to the present day, where I have a good level of fitness and also looking to graduate from University in a couple months, then nothing is impossible. Read more

Posted to: Spring awareness blogs 2019

Published: 22nd February, 2019

Updated: 3rd September, 2024

Author: Grazina Berry

What it was really like to save my brother's life

What it was really like to save my brother's life

I’m Stephanie and at age 17, I was a stem cell donor for my brother James, to save his life. Read more

Posted to: Spring awareness blogs 2019

Published: 22nd February, 2019

Updated: 3rd September, 2024

Author: Grazina Berry

What it's really like to be a parent of a child with AA

What it's really like to be a parent of a child with AA

07.11.17 imprinted - because life changed forever that day Read more

Posted to: Spring awareness blogs 2019

Published: 22nd February, 2019

Updated: 3rd September, 2024

Author: Grazina Berry

Back to top

Latest

  • Treatment to reduce your risk of infections

    Treatment to reduce your risk of infections

    Anti-microbial drugs that you may receive include antibiotics, anti-viral and antifungal drugs. They prevent and treat infections (infections which can be more dangerous for people with aplastic anaemia.)

  • Raising for the rare

    Running for Thomas!!! My son was diagnosed with Severe aplastic anemia in June 2025.

  • Young People's Support Group Taster Session

    Young People's Support Group Taster Session

    Are you aged 16-25, and affected by a rare bone marrow failure condition? If so, we'd love you to join us at our young people's support group taster session where we will help you to navigate stressful and uncertain times.

  • London Landmarks Half Marathon 2027

    London Landmarks Half Marathon 2027

    Join our 2027 London Landmarks Team! Spaces are limited and going fast so we recommend signing up now!

Most read

  • Covid Vaccination Updates

    Covid Vaccination Updates

    All of the latest updates about Covid vaccines and their impact on the AA community.

  • Treatment involving anti-thymocyte globulin (ATG)

    Treatment involving anti-thymocyte globulin (ATG)

    If you are an adult patient going into the hospital for ATG treatment, this fact sheet is for you

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of all essential blood cells. Learn more about the condition, treatment, and how it impacts your life.

  • What is receiving ATG treatment like?

    What is receiving ATG treatment like?

    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • Treatment with ciclosporin

    Treatment with ciclosporin

    Ciclosporin used as part of Anti-Thymocyte Globulin (ATG) treatment for adult patients

  • Diagnosis and treatment: a short summary

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Get support

    Get support

    If you or someone you know has been diagnosed with aplastic anaemia or another rare bone marrow failure condition, we are here to help. No question is too big, or too small. Contact us online or give us a call.

  • Holidays and Travel

    Holidays and Travel

    How to plan a holiday when diagnosed with aplastic anaemia

  • Eltrombopag for the treatment of aplastic anaemia

    Eltrombopag for the treatment of aplastic anaemia

    Eltrombopag is one of the newer treatments for aplastic anaemia. You can find out more about it here.

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

Tag cloud

ATG Buffy Buffy Younger Impact Fund children diagnosis Elin's blog fundraising mental health Parents Positive stories Santa Splash stem cell transplant Super Rare video videos young people
Emotional Wellbeing support

Emotional Wellbeing support

Living with a rare bone marrow failure condition, or supporting someone who is can have a big impact on your emotional wellbeing. Our expert team are here to help you navigate these challenges and help you to feel less anxious and more in control. Read more

Published: 3rd January, 2024

Updated: 1st April, 2026

Author: Ellie Dawes

Register with The Aplastic Anaemia Trust

Register with The Aplastic Anaemia Trust

Are you living with aplastic anaemia, or a related condition like PNH, Fanconi anaemia, Dyskeratosis Congenita or Schwachman Diamond Syndrome? Or are you supporting a friend or family member who has? Please take a few minutes to register with us here. Read more

Published: 31st July, 2025

Updated: 4th February, 2026

Author: Ellie Dawes

Live in Wales? Write to your Senedd candidates and ask them to ensure patients have access to eltrombopag!

Live in Wales? Write to your Senedd candidates and ask them to ensure patients have access to eltrombopag!

On May 7th, the people of Wales go to the polls to elect new members of the Welsh Parliament. This election is an opportunity for those impacted by aplastic anaemia to raise the vital issue of fair access to medications for those living with rare diseases. Read more

Posted to: Spring awareness blogs 2019

Published: 7th April, 2026

Updated: 16th April, 2026

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