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  • Supporting someone who has aplastic anaemia
  1. Supporting someone who has aplastic anaemia

Supporting someone who has aplastic anaemia

Has someone you know received a diagnosis of aplastic anaemia?

Thank you for being here! 

Aplastic anaemia is a very rare and serious condition and people diagnosed need support from their family, friends, colleagues, employers and education setting! 

We're here to answer all your questions about aplastic anaemia, so if there's anything you can't find - please give us a ring on 0300 102 3202 or email [email protected].

Partner anxiety: how to cope when a partner is unwell

Partner anxiety: how to cope when a partner is unwell

Caroline Lovett, a psychosexual and relationship therapist, discusses how you may be feeling as a partner of someone with a complex health condition. Read more

Published: 12th May, 2026

My brother or sister has aplastic anaemia

My brother or sister has aplastic anaemia

A guide for young adults who are supporting a sibling. This guide has been put together with the help of young people and their families. It talks about how you might feel deal with separation as a family, and what happens if you are asked to be tested to see if you are a match for a stem cell transplant. There are lots of tips from people who have been through what you and your family are going through and how to support your own emotional wellbeing. Read more

Published: 5th August, 2025

Updated: 11th August, 2025

Author: Ellie Dawes

Supporting your employee

Supporting your employee

Be there for your employee who is affected by aplastic anaemia. Ideas and advice on how to support your employee who has aplastic anaemia or has a loved one with aplastic anaemia, so they feel seen and included. Read more

Published: 17th April, 2024

Updated: 15th September, 2025

Author: Hannah Mitchell

What is aplastic anaemia?

What is aplastic anaemia?

Aplastic means your bone marrow is failing to produce enough of all essential blood cells. Learn more about the condition, treatment, and how it impacts your life. Read more

Published: 19th December, 2023

Updated: 19th March, 2026

Author:

Comments: 1

Sunshine Magazine

Sunshine Magazine

The internet is great for connecting people - but sometimes you just can't beat cheerful post. We also provide our Sunshine magazine which we post out 3 or 4 times a year - request your copy here. Read more

Published: 27th July, 2023

Updated: 19th March, 2026

Author: Ellie Dawes

For secondary schools, colleges and universities

For secondary schools, colleges and universities

This guide provides a toolkit for secondary schools, colleges and universities, to help them to meet the needs of young people with aplastic anaemia. Read more

Published: 6th August, 2021

Updated: 19th March, 2026

Author: Ellie Dawes

Guide for primary schools and early years settings

Guide for primary schools and early years settings

This guide provides a toolkit for primary schools and early years settings. It outlines how best to support a child with aplastic anaemia. Read more

Published: 6th August, 2021

Updated: 19th March, 2026

Author: Ellie Dawes

Supporting your child through aplastic anaemia

Supporting your child through aplastic anaemia

A collection of advice and tips from young people and their family members on helping your child when they have aplastic anaemia. Read more

Published: 11th June, 2020

Updated: 19th March, 2026

Author: Leena O'Hara

Comments: 1

My friend has aplastic anaemia

My friend has aplastic anaemia

Advice and tips from young adults on how you can support your friend. Read more

Published: 1st May, 2020

Updated: 20th March, 2026

Author: Leena O'Hara

Talking to your child about their aplastic anaemia

Talking to your child about their aplastic anaemia

A collection of advice and tips from parents and carers on talking about their child’s aplastic anaemia diagnosis with them. Read more

Published: 28th April, 2020

Updated: 19th March, 2026

Author: Yoann Van Nuwenborg

Donate blood and stem cells

Most people with bone marrow failure will need blood transfusions at some point during their treatment, and many will need a stem cell transplant. So donors are literally life-savers! Read more

Published: 6th April, 2018

Updated: 1st April, 2026

Author:

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Latest

  • Treatment to reduce your risk of infections

    Treatment to reduce your risk of infections

    Anti-microbial drugs that you may receive include antibiotics, anti-viral and antifungal drugs. They prevent and treat infections (infections which can be more dangerous for people with aplastic anaemia.)

  • Raising for the rare

    Running for Thomas!!! My son was diagnosed with Severe aplastic anemia in June 2025.

  • Young People's Support Group Taster Session

    Young People's Support Group Taster Session

    Are you aged 16-25, and affected by a rare bone marrow failure condition? If so, we'd love you to join us at our young people's support group taster session where we will help you to navigate stressful and uncertain times.

  • London Landmarks Half Marathon 2027

    London Landmarks Half Marathon 2027

    Join our 2027 London Landmarks Team! Spaces are limited and going fast so we recommend signing up now!

Most read

  • Covid Vaccination Updates

    Covid Vaccination Updates

    All of the latest updates about Covid vaccines and their impact on the AA community.

  • Treatment involving anti-thymocyte globulin (ATG)

    Treatment involving anti-thymocyte globulin (ATG)

    If you are an adult patient going into the hospital for ATG treatment, this fact sheet is for you

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of all essential blood cells. Learn more about the condition, treatment, and how it impacts your life.

  • What is receiving ATG treatment like?

    What is receiving ATG treatment like?

    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • Treatment with ciclosporin

    Treatment with ciclosporin

    Ciclosporin used as part of Anti-Thymocyte Globulin (ATG) treatment for adult patients

  • Diagnosis and treatment: a short summary

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Get support

    Get support

    If you or someone you know has been diagnosed with aplastic anaemia or another rare bone marrow failure condition, we are here to help. No question is too big, or too small. Contact us online or give us a call.

  • Holidays and Travel

    Holidays and Travel

    How to plan a holiday when diagnosed with aplastic anaemia

  • Eltrombopag for the treatment of aplastic anaemia

    Eltrombopag for the treatment of aplastic anaemia

    Eltrombopag is one of the newer treatments for aplastic anaemia. You can find out more about it here.

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

Tag cloud

ATG Buffy Buffy Younger Impact Fund children diagnosis Elin's blog fundraising mental health Parents Positive stories Santa Splash stem cell transplant Super Rare video videos young people
Emotional Wellbeing support

Emotional Wellbeing support

Living with a rare bone marrow failure condition, or supporting someone who is can have a big impact on your emotional wellbeing. Our expert team are here to help you navigate these challenges and help you to feel less anxious and more in control. Read more

Published: 3rd January, 2024

Updated: 1st April, 2026

Author: Ellie Dawes

Register with The Aplastic Anaemia Trust

Register with The Aplastic Anaemia Trust

Are you living with aplastic anaemia, or a related condition like PNH, Fanconi anaemia, Dyskeratosis Congenita or Schwachman Diamond Syndrome? Or are you supporting a friend or family member who has? Please take a few minutes to register with us here. Read more

Published: 31st July, 2025

Updated: 4th February, 2026

Author: Ellie Dawes

Live in Wales? Write to your Senedd candidates and ask them to ensure patients have access to eltrombopag!

Live in Wales? Write to your Senedd candidates and ask them to ensure patients have access to eltrombopag!

On May 7th, the people of Wales go to the polls to elect new members of the Welsh Parliament. This election is an opportunity for those impacted by aplastic anaemia to raise the vital issue of fair access to medications for those living with rare diseases. Read more

Published: 7th April, 2026

Updated: 16th April, 2026

Register with us

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The Aplastic Anaemia Trust
St Laurence Pastoral Centre
173 Church Road
Northfield
Birmingham
West Midlands
B31 2LX 



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Registered Charity in Scotland number: SC049810

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