We understand that explaining a rare condition to a healthcare professional or in a stressful emergency can be daunting. That’s why we are partnering with CamRARE Disease to bring their ‘This Is Me’ Rare Patient Passport to our community! 

To apply for your own Rare Patient Passport, fill in this form  www.camraredisease.org/patient-passport

There is a question that asks if you’d like your passport customised to a particular patient group. This is where you can select our charity and our logo will appear on your passport.

CamRARE will distribute the passports via email directly to you, they’ll include a handy user guide and a film of how to fold the passport.

 To find out more about CamRARE please see their website https://www.camraredisease.org/