Every child and young person diagnosed with aplastic anaemia deserves the best treatment, care and chances of leading a full, and enjoyable life Read more
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Anti-microbial drugs that you may receive include antibiotics, anti-viral and antifungal drugs. They prevent and treat infections (infections which can be more dangerous for people with aplastic anaemia.) Read more
Living with a rare bone marrow failure condition can have a real impact on your intimate relationships. We asked Caroline Lovett, a psychosexual and relationship therapist, to work with us to create this series of articles and videos, covering some of the issues and feelings you might be experiencing. Read more
Karen is running the London Marathon to support people with a rare form of bone marrow failure Read more
If you are claiming ESA or Universal Credit on the grounds that you have an illness or disability that means that you are unable to work you will be called to have a work capability assessment which is the test to assess your capability for work. Read more
As part of the ‘full roll out’ of Universal Credit, claimants making new claims to any of the six legacy benefits will have to make a new claim to Universal Credit. This is called ‘Natural Migration’. The Government is also in the process of moving all existing claimants over to Universal Credit, this is called ‘Managed Migration’ and will take place over the next few years. Read more
Personal Independence Payment (PIP) is a benefit which was introduced in 2013 to replace Disability Living Allowance (DLA). The benefit is paid to you if you have a disability or health condition which affects you with your daily activities on a daily basis. Read more
Pension Credit is a means tested benefit for those which have reached state pensionable age. This can be checked online. It ensures that in retirement that income does not fall below a specified level. It is made up of different amounts and premiums which all together made the ‘appropriate amount’ Read more
New Style ESA is a benefit which you may be entitled to claim if you are unable to work on the basis of being too unwell to work. It is administered by the DWP and claims are to be made using the specific claim form which you can access at https://www.gov.uk/employment-support-allowance/how-to-claim Read more
The calculation can be quite complicated and so if there is something that you are not sure about, please do feel free to book in with the Benefits Advisor (details below) Read more
Council Tax is a charge applied to every property in the country which pays for local services in your area including rubbish collection and local emergency services. It is a priority bill which means that it is extremely important that you pay this charge otherwise you could find yourself in trouble. Read more
Housing costs are the costs associated with maintaining the property in which you live. These are typical classed into rent for people renting their accommodation, and mortgages for those who own their property. Read more
DLA is a disability based benefit for children between the ages of 0-16 who experience ‘higher care or mobility needs than a child of a similar age’. This is a non-means tested benefit which is assessed on the basis of how disabled a child is. Read more
Following the UKs exit from the European Union, you would have needed to have made an application for settled or pre-settled status before the deadline of 30th June 2021 if you did not do this, you should obtain immigration advice. Read more
If you have received a Department for Work and Pensions (DWP) decision which you disagree with, you can challenge this if you feel that it is incorrect, and many decisions are overturned on this basis. Common examples of decisions being overturned occur due to evidence being ignored as well as the law being incorrectly applied. Read more
Carers Allowance is a benefit which can be paid to a person if they provide substantial care for a person who is ‘severely disabled’. Severely disabled in this instance means that the individual concerned qualifies for Personal Independence Payment Daily Living, Attendance Allowance or Disability Living Allowance for Care at least the Middle rate. Read more
Keep up to date with our fundraising for The Aplastic Anaemia Trust. Read more
When you are being treated for aplastic anaemia, you may need to spend some time in isolation. This means that for a while you need to be protected from germs and will need to see and spend less time with people than usual. Many people have told us that spending time in isolation can feel like one of the biggest challenges when dealing with aplastic anaemia. However, there are things you can do to make it feel better. Read more
How we use the information you provide when you register. Read more
A guide for young adults who are supporting a sibling. This guide has been put together with the help of young people and their families. It talks about how you might feel deal with separation as a family, and what happens if you are asked to be tested to see if you are a match for a stem cell transplant. There are lots of tips from people who have been through what you and your family are going through and how to support your own emotional wellbeing. Read more
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Small activities for when you're stuck in hospital or feeling rubbish at home to help you face the day with optimism and wonder. Read more
Are you living with aplastic anaemia, or a related condition like PNH, Fanconi anaemia, Dyskeratosis Congenita or Schwachman Diamond Syndrome? Or are you supporting a friend or family member who has? Please take a few minutes to register with us here. Read more
Frequently Asked Questions: Writing Your Will & Leaving a Gift to The Aplastic Anaemia Trust Read more
Find out more about how we can support you when a loved one has died Read more