Rare Voices podcast episode 6: How do we raise awareness of rare conditions? This final episode looks at the lack of public awareness about rare bone marrow conditions and the challenges in getting people to understand them. We highlight the work of the collective charities to raise awareness and why it’s so important to educate people about these conditions and what it means for those living with them. Guests: Stacy, parent of a child with Fanconi Anaemia Jovita, living with PNH Paula, living with with Dyskeratosis Congenita (DC) Listen now: You can also search for "Rare Voices Podcast" to listen on your favourite podcast app. Want to hear from people living with ultra rare bone marrow conditions? Listen to our podcast! Listen to more podcast episodes Find more AA voices AA voices AA voices is the area of our website where people affected by aplastic anaemia or related conditions share the stories they feel are important, in their own words. If you would like to tell your story here, please get in touch with Ellie, our Head of Comms, by emailing [email protected]. Manage Cookie Preferences