Rare Voices Podcast episode 4: How to find your tribe Loneliness is rife among people living with rare blood disorders. But there’s a whole community of people out there who are willing to connect. How can you speak to friends about your condition? What can you do to combat loneliness when you’re struggling to leave the house? How are people with similar conditions finding each other? What can you do to manage your condition when you’re out? How do you recruit friends to help you if things take a turn? Guests: Virginia, living with PNH Shabraz, living with Fanconi Anaemia Claire, living with aplastic anaemia Listen now: You can also search for "Rare Voices Podcast" to listen on your favourite podcast app. Want to hear from people living with ultra rare bone marrow conditions? Listen to our podcast! Listen to more podcast episodes Find more AA voices AA voices AA voices is the area of our website where people affected by aplastic anaemia or related conditions share the stories they feel are important, in their own words. If you would like to tell your story here, please get in touch with Ellie, our Head of Comms, by emailing [email protected]. Manage Cookie Preferences