Rare Voices podcast episode 2: Dealing with parental anxiety

For parents of those with rare bone marrow conditions in particular, life can be exceedingly stressful. Just over three quarters of parents surveyed for the Rare Voices report said they felt anxious at least some of the time. How can parents manage this anxiety and ensure they’re giving their child the support that they need? 

Guests: 

• Stacy, parent of a child with Fanconi Anaemia
• Julia, parent of a child with Shwachman Diamond Syndrome
• Shah, parent of a child with Dyskeratosis congenita (DC)

You can also search for "Rare Voices Podcast" to listen on your favourite podcast app.

Want to hear from people living with ultra rare bone marrow conditions? Listen to our podcast!    Listen to more podcast episodes  Find more AA voices

AA voices

AA voices is the area of our website where people affected by aplastic anaemia or related conditions share the stories they feel are important, in their own words. If you would like to tell your story here, please get in touch with Ellie, our Head of Comms, by emailing [email protected].