Meet Barbara

For our 2024 Christmas appeal, we spoke to Barbara, who told us all about how the connection and support she found through The AAT made all the difference when she was at her most poorly with aplastic anaemia.

Find out what this support meant to Barbara:

Latest

Treatment to reduce your risk of infections

Anti-microbial drugs that you may receive include antibiotics, anti-viral and antifungal drugs. They prevent and treat infections (infections which can be more dangerous for people with aplastic anaemia.)
Raising for the rare

Running for Thomas!!! My son was diagnosed with Severe aplastic anemia in June 2025.
Young People's Support Group Taster Session

Are you aged 16-25, and affected by a rare bone marrow failure condition? If so, we'd love you to join us at our young people's support group taster session where we will help you to navigate stressful and uncertain times.
London Landmarks Half Marathon 2027

Join our 2027 London Landmarks Team! Spaces are limited and going fast so we recommend signing up now!

Why Your Legacy Matters

How gifts in Wills help families like Fiona’s...
Rare Voices podcast

Our brand new podcast series explores the experiences and challenges of living with a rare condition like aplastic anaemia.
Rare Voices podcast episode 2: Dealing with parental anxiety

For parents of those with rare bone marrow conditions in particular, life can be exceedingly stressful. Just over three quarters of parents surveyed for the Rare Voices report said they felt anxious at least some of the time. How can parents manage this anxiety and ensure they’re giving their child the support that they need?
What's it like having chronic skin GvHD, and being treated with ECP?

Around eighteen months after receiving a stem cell transplant, I was diagnosed with chronic skin GvHD and have been treated with ECP. Here's a post explaining what the treatment is like.
TIARA trial results: What could this mean for patients?

Sam Williams from The Aplastic Anaemia Trust Support Team is the TIARA trial’s Patient Representative. He explains why his own experience of treatment side effects and his conversations with patients mean he's excited for this potential brand new treatment.
Emotional wellbeing - found online

Barbara told us about why she found joining our Facebook group and completing our Managing Stress course so helpful.
40 Days and 40 Nights -Cycling Weekly 9th May 2024

Nick Topley spent six weeks in isolation after a bone marrow transplant, but returned to become a medal-winning racer. In this article in 'Cycling Weekly' Magazine explains how cycling has been key to his rehabilitation and recovery.
Recalibrate Podcast - Rachel and Connor's story

Recalibrate Podcast- Episode 4, Connor and Rachel, who's son Max was diagnosed with Aplastic Anaemia, speak to Dr James Somauroo about the challenges of managing their son’s care and treatment amidst a pandemic. The impact of the experience on their and their son’s mental health and the lessons they hope that we all learn from the experiences of families like theirs.
What it’s like to have Graft Versus Host Disease (GVHD) after transplant

After receiving a stem cell transplant in September 2021, I knew I had a long recovery journey ahead of me. Everyone has different experiences - here's a post explaining the side effects I experienced, and how they were treated.
AAT Voices - What Was it Like For Family and Friends

Lily, Dan, Henry and Elin talk about what it’s like being a sibling that isn’t a match, feeling like a burden and wanting to protect those you love from your own pain

Emotional Wellbeing support

Living with a rare bone marrow failure condition, or supporting someone who is can have a big impact on your emotional wellbeing. Our expert team are here to help you navigate these challenges and help you to feel less anxious and more in control. Read more

Register with The Aplastic Anaemia Trust

Are you living with aplastic anaemia, or a related condition like PNH, Fanconi anaemia, Dyskeratosis Congenita or Schwachman Diamond Syndrome? Or are you supporting a friend or family member who has? Please take a few minutes to register with us here. Read more

Live in Wales? Write to your Senedd candidates and ask them to ensure patients have access to eltrombopag!

On May 7th, the people of Wales go to the polls to elect new members of the Welsh Parliament. This election is an opportunity for those impacted by aplastic anaemia to raise the vital issue of fair access to medications for those living with rare diseases. Read more